About this page! This is Ryders page!
Ryder is a spunky and fun six year old boy who has a gastronomy feeding tube in his belly. The gastronomy feeding tube provides necessary calories needed to grow due to the fact that he was born with very rare food allergies/FPIES, oral aversion, and sensory concerns that prevented him from eating enough to live and thrive.
Food Protein-Induced Enterocolitis Syndrome (F-PIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profuse vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be immediate and do not show up on standard allergy tests. Furthermore, a negative allergy evaluation may delay the diagnosis and take the focus off the causative food. Nonetheless, FPIES can present with severe symptoms following ingestion of a food trigger.
He has depended on the gastronomy feeding tube since he was 25 months old so that he could live. He now has been cleared to eat (yayyyyyyyyyyyy) but is too afraid. Too much emotional trauma was done to this little guy. We have a lot of mental healing that is needed for this little guy. I am making these beautiful candles to raise the funds needed to receive the professional help he needs and deserves so he can grow and heal! Thank you so much for your order and helping change this little ones future!
Fundraising Break Down
Growing Independent Eaters (Full Support Wean) $2,800.00
EMDR and Play Therapy each week for the next year or more (after insurance this is our co pay) $1512.00
Families By Design Heart Healing Master Course (for trauma and attachment healing) $1,200.00
We are also considering a intensive several week hospital stay at the children's hospital a few hours away. This will of course be more money in lodging, food, travel, and comfort items for Ryders stay if that is decided needs to be done.
Thank you for reading this and we appreciate your help!